Wahoo! Finally some GOOD news!

My surgery is scheduled! I go in May 24th for the actual surgery at the Grey Nuns Hospital. On the 25th I go to the Aberheart to the PD Clinic to have them look at the wound, clean it and change the dressing then on the 28th I start my PD classes from 9-4. So Happy!

Also on the 28th I am seeing Roger Waters and the Wall so it should be a fun time :) I am going to need to relisten to The Wall So i remember what it is about...lol.

This is the song I remember from the 1980's when I was in high school...poor Mr. Chapman, we drove him crazy playing that song! We Don't Need No Education (Offically called Just another Brick in the Wall).

Thanks for all the support everyone :)

Oh and for the record, I had told the renal clinic at the Grey Nuns about the adverse reaction to local anesthetics...2 yrs ago! It was in my medical chart...the one that my specialist obviously hadn't read.

Cora

I don't ask for good vibes to be sent out to universe too often...

but I am asking today. I have my appointment today at the Grey Nuns Hospital to do the consultation to have the catheter excised for my tummy, so I can start PD. I am hoping that we can co-ordinate it all. I was quite anxious lastnight and didn't sleep well.

Think I will be listening to Danielle Lowe today, dang I wish I had bought her album when I had met her. She is soooo good!

I am scared to death and so unsure about all of this. Trying to take it all in stride...not really working though :) I just wish that this would all settle...I need to get back on the transplant list, etc. There is a wonderful Rick Tippe song called "Keeping The Faith". It has always been one of my favorite songs and now it brings on more meaning for me. Again, it is has to do with cancer but the feelings are the same.

I am so thankful to my husband who is just amazing :D I don't say it enough but I love you honey. Thank you for being there through it all. Thank you for being my side through it all. thank you for staying strong and for being there even when I wanted to give up and crawl into a hole. You are the best my sweety :)

Cora

Another quick update...

Wondering if my post about everything going on caused a ruckus? I heard from Susan on Wednesday...what a complete turn around. I now have an appointment for a consultation at the Grey Nuns Hospital, at 2:30. We are going to be discussing the best way to excise the catheter, which is a far cry from "Not going to happen unless you use the local anesthetic" comments. So I will be starting my dialysis just not when I thought I would. Looks like it will be sometime in May or possibly early June.

Yeah!

Cora

Yet Another update :D

I saw my specialist on Tuesday and all is stable. My kidney function is at 10%, dialysis won't start until I am at 8% and/or I feel soooooooo crappy. I am finding the hardest thing to deal with is the weight gain and the muscle aches. I have a kilo (2.5 lbs) since my last appointment. I can feel it as my hips and knees deal with the weight gain. I am trying to figure out how I have gained the weight as my eating patterns haven't changed...hmm. Could be the swelling and the toxins.

Ia m currently on the hunt for a new doctor. So far not doing well with finding one. As soon as they find out I am a renal patient who is in renal failure they don't want to take me on as a patient. That I am too much work...sigh. Dr. Passani is doing everything with regards to my renal issues, but in order for me to even get on the transplant list I have test that must be completed by a regular doctor.

So other than that all is good :D

So I guess I should let you know what happened at the specialists....

not much other than I had a complete and utter meltdown.  I am not handling my stress very well and have just found out that all the toxins in my body from being in predialysis isn't helping.

I am having difficulties trusting people and so I shut everyone out. I have done it in the past as whenever I let anyone in I ultimately got hurt and it is something I am dealing with right now. Not sure how to deal with my family and the moment...or even who to trust within that family. According to my one mother, I have a "new" and and an "old" family; now that I have this "new" family I don't need to be with the "old" family or some such nonsense.

I really would love to talk about it all but a publication ban on part of the story is in place so I could get arrested for contempt.  Hmmm almost sounds like an idea..lol. Suffice it to say that have a very strange family to deal with and somedays I wish I didn't have to.

I am off to see the specialist today.

I am a bit nervous as I haven't seen since March when the whole kidney failure diagnosis happened. I am not looking forward to this at all. I don't like the new nurse and I don't like my doctor....inspires a lot of confidence there huh? I am also still quite tired from the trip although I had an awesome time. I guess I am just tired. Everything is so up in the air right now. I will let everyone know how it went.

Cora