Welcome One and All!

I started this blog to chronicle the my life as a renal patient. I started having issues back in 1983. I had an infection that hadn't been treated as an infection; it had been treated as pulled muscle as I had been working as a nanny at the time. Life went on and then I dealt with a series of infections of infections which resulted in 4 minor surgeries from 1985 to 87. Than I had 3 kids; dealing with minor infections along the way. This culminated in discovering in 1998 that I was in what the call Chronic Renal Failure, my right kidney was imploding, the left was starting to go as well.

I finally had the right kidney removed in 1999, which resulted in complications. I almost didn't make it. When I moved back to Edmonton from BC, I started seeing a nephorogist, Dr. Caldwell, from the U of A. In 2007 I had 75% renal function, fast-forward to today I have 13% and it is getting worse.

I decided I needed a place to share what I am going through for a variety of reasons:

1) to get out of my head and work through the anxiety and fear that I am feeling.

2) that somehow my ramblings can be of help to others.

3) most of all to share my journey with others and to help me share with my own family.

Great Sites for Information

Kidney Foundation of Canada

Kidney Foundation of Canada

National Kidney Foundation (USA)

National Kidney Foundation (USA)

(I will Post more as I find out more information.)

Here are some great foums and educational sites...

Kidney School
Kidney School
Kidney Friends Forum
Kidney Friends


Also there are some groups on Facebook:
Canadian Kidney Connection
Canadian Kidney Connection

Ontario’s Renal Community
Ontario’s Renal Community

I will add more as they come in. Cora

Friday, August 13, 2010

Feeling really frustrated right now....

I think it is because I am being hit with everything at once...

As you know, Tuesday I go to the Grey Nuns to have my presurgery appointment for the peritoneal dialysis tube placements. I am really trying not to think about it right now. I know it is a good thing, just I get nervous and concerned when I think of it. So trying to think in the NOW.

Then I got hit with two whammies on different fronts. One is from the Renal Transplant team the other was about an ultrasound.

I was expecting information regarding the transplant time but it appears I have to attend some sort of teaching class which is a mandatory "first step" for which I am not automatically put on the list. It is only the start of my workup process. So it is August 25 at 8:30 am at the U of A. Two questions...why so fricken early and why always at the U of A? Doesn't the Royal Alexandria have a renal unit as well.?

I then get a phone call from the ultrasound place. Apparently it is believed that the ultrasound will tell why I am pain. Not sure how, i have had this done before with no answers. I think it is just a waste of time. Again it is on August 23rd at 7:45 AM. Again what is whit the fricken early mornings?Again near the U of A, why? There are perfectly good ultrasound places on the northside (Northgate comes to mind) that would be easier for me to go to. So far it has bee either the U of A or St. Albert. I hate the ultrasounds because I am in so much pain afterwards, usually for a few days.  This is really pissing me off as Dr. Caldwell should be talking with me before making decisions.

I am tired of being poked and prodded without explanation.  I have to have monthly blood work done, for which I got badly bruised.  I am just so frustrated at not having anweres.

No comments: