Welcome One and All!

I started this blog to chronicle the my life as a renal patient. I started having issues back in 1983. I had an infection that hadn't been treated as an infection; it had been treated as pulled muscle as I had been working as a nanny at the time. Life went on and then I dealt with a series of infections of infections which resulted in 4 minor surgeries from 1985 to 87. Than I had 3 kids; dealing with minor infections along the way. This culminated in discovering in 1998 that I was in what the call Chronic Renal Failure, my right kidney was imploding, the left was starting to go as well.

I finally had the right kidney removed in 1999, which resulted in complications. I almost didn't make it. When I moved back to Edmonton from BC, I started seeing a nephorogist, Dr. Caldwell, from the U of A. In 2007 I had 75% renal function, fast-forward to today I have 13% and it is getting worse.

I decided I needed a place to share what I am going through for a variety of reasons:

1) to get out of my head and work through the anxiety and fear that I am feeling.

2) that somehow my ramblings can be of help to others.

3) most of all to share my journey with others and to help me share with my own family.

Great Sites for Information

Kidney Foundation of Canada

Kidney Foundation of Canada

National Kidney Foundation (USA)

National Kidney Foundation (USA)

(I will Post more as I find out more information.)

Here are some great foums and educational sites...

Kidney School
Kidney School
Kidney Friends Forum
Kidney Friends

Also there are some groups on Facebook:
Canadian Kidney Connection
Canadian Kidney Connection

Ontario’s Renal Community
Ontario’s Renal Community

I will add more as they come in. Cora

Monday, May 28, 2012

Just a quick update....

Surgery went well, although I am still very sore...didn't help that Saturday night we almost got into an accident on the way back from the Da Camara AGM BBQ. Idiot cut us off because he was in too much of a rush to wait for the bus to turn onto 82 st from 118 ave...so I am a bit more bruised as a result.

Fast foreward to today...went to the PD Clinic at the Aberhart Centre to learn how to do this dialysis...boy is there a lot to learn! So  am doing okay...a bit emotion as reality hit like a ton of bricks. So we started after I grabbed a coffee and something to eat. I woke up at 8:15 when I should've been on the trian...oops. I hadn't slept well which happens.

So we started to solution in my abdomun (sp?), which went fine...draining was whole other ball of wax, let me tell you! As you all know I have been dealing with IBS-D. So i go through bouts of constipation and diahraeh  (sp?), unless I can eat my high fibre diet which helps to even out things. Well the last 2 years been told, no way!

Now I have been asked why their was none of the "history" in my files...to which I responded with a lot fo anger and frustration, I had had enough and wasn't taking anymore crap from the health system. I am used to having control over all the decisions that go along with informed choices. Non of which I have had in the last 2 yrs. I fell like Dorothy in The Wizard of Oz...."I don't think we are in Kansas anymore Toto." Although in my case I would be talking to Leo or Scrappy...lol.

So after having an x-ray so we can see what is going on, if anything, so I havet o go back in the morning, this time with the hubby, who has to take time off of work, because this woman has had ENOUGH! So tommorrow I see my nurse, dietician, Dr. Passani and the social worker. I bthink they are worried because of what I said in the. Officce.  So we shall see what happens tomorrow.

Tonight I am going to enjoy the Wall-Roger Waters is in town for the next two nights...yeah!


(PS will come back and fix the errors whenn I can access my home computer)

Thursday, May 3, 2012

Wahoo! Finally some GOOD news!

My surgery is scheduled! I go in May 24th for the actual surgery at the Grey Nuns Hospital. On the 25th I go to the Aberheart to the PD Clinic to have them look at the wound, clean it and change the dressing then on the 28th I start my PD classes from 9-4. So Happy!

Also on the 28th I am seeing Roger Waters and the Wall so it should be a fun time :) I am going to need to relisten to The Wall So i remember what it is about...lol.

This is the song I remember from the 1980's when I was in high school...poor Mr. Chapman, we drove him crazy playing that song! We Don't Need No Education (Offically called Just another Brick in the Wall).

Thanks for all the support everyone :)

Oh and for the record, I had told the renal clinic at the Grey Nuns about the adverse reaction to local anesthetics...2 yrs ago! It was in my medical chart...the one that my specialist obviously hadn't read.


Wednesday, May 2, 2012

When I hear the song "I'm Going to Love You Through It"...

this is what I am picturing...

This is what I see with my DH even when I am feeling like giving up he is there. Remember just to hold on and get passed that tough spot. Reach out even if it is to just blog about it. I am actually not sure how many people actually read this blog...but I hope it helps just one even if that one is me.

I hope your hear that too :D



I don't ask for good vibes to be sent out to universe too often...

but I am asking today. I have my appointment today at the Grey Nuns Hospital to do the consultation to have the catheter excised for my tummy, so I can start PD. I am hoping that we can co-ordinate it all. I was quite anxious lastnight and didn't sleep well.

Think I will be listening to Danielle Lowe today, dang I wish I had bought her album when I had met her. She is soooo good!

I am scared to death and so unsure about all of this. Trying to take it all in stride...not really working though :) I just wish that this would all settle...I need to get back on the transplant list, etc. There is a wonderful Rick Tippe song called "Keeping The Faith". It has always been one of my favorite songs and now it brings on more meaning for me. Again, it is has to do with cancer but the feelings are the same.

I am so thankful to my husband who is just amazing :D I don't say it enough but I love you honey. Thank you for being there through it all. Thank you for being my side through it all. thank you for staying strong and for being there even when I wanted to give up and crawl into a hole. You are the best my sweety :)