Welcome One and All!

I started this blog to chronicle the my life as a renal patient. I started having issues back in 1983. I had an infection that hadn't been treated as an infection; it had been treated as pulled muscle as I had been working as a nanny at the time. Life went on and then I dealt with a series of infections of infections which resulted in 4 minor surgeries from 1985 to 87. Than I had 3 kids; dealing with minor infections along the way. This culminated in discovering in 1998 that I was in what the call Chronic Renal Failure, my right kidney was imploding, the left was starting to go as well.

I finally had the right kidney removed in 1999, which resulted in complications. I almost didn't make it. When I moved back to Edmonton from BC, I started seeing a nephorogist, Dr. Caldwell, from the U of A. In 2007 I had 75% renal function, fast-forward to today I have 13% and it is getting worse.

I decided I needed a place to share what I am going through for a variety of reasons:

1) to get out of my head and work through the anxiety and fear that I am feeling.

2) that somehow my ramblings can be of help to others.

3) most of all to share my journey with others and to help me share with my own family.

Great Sites for Information

Kidney Foundation of Canada

Kidney Foundation of Canada

National Kidney Foundation (USA)

National Kidney Foundation (USA)

(I will Post more as I find out more information.)

Here are some great foums and educational sites...

Kidney School
Kidney School
Kidney Friends Forum
Kidney Friends


Also there are some groups on Facebook:
Canadian Kidney Connection
Canadian Kidney Connection

Ontario’s Renal Community
Ontario’s Renal Community

I will add more as they come in. Cora

Friday, November 26, 2010

I had an interesting conversation with a colleague lastnight...

I had gone to work after having a nap. I had gone to the dr's and I was right I had another Urinary Tract Infection. I got to work and I was doing fine, but I could feel a fever coming on and general malaise. I finished my shift and spoke with my manager and told her that I just didn't think I could come in today. turned out it was a great idea as I had been up several times in the night to the bathroom so I didn't get a lot of sleep.


My colleague asked me how do I do it? I come to work (Nygard Fashions) and work hard and then go home. I also am involved in my community work (Alberta Ave Community League, Safe Streets, Alberta Avenue Revitalization, EFCL Planning and Development Committee) as well. Sometimes I wonder but I came across a blog today that may have well given me the reason as to why; Angie's blog on the Kidney Foundation of Canada. Angie also has a blog here as well. I have to say thank goodness for the internet. Sometimes I feel as if I am way over my head on all of this.

Sometimes it feels as if I am running her there and everywhere just putting out fires. the Alberta Health Care System is in crisis, which is difficult for a patient who is dealing with one health issue after another. I seem to be dealing with one health crisis after another and unable to see the doctors that I should be seeing. It can be very daunting and scary at the same time.

Cora

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