Welcome One and All!

I started this blog to chronicle the my life as a renal patient. I started having issues back in 1983. I had an infection that hadn't been treated as an infection; it had been treated as pulled muscle as I had been working as a nanny at the time. Life went on and then I dealt with a series of infections of infections which resulted in 4 minor surgeries from 1985 to 87. Than I had 3 kids; dealing with minor infections along the way. This culminated in discovering in 1998 that I was in what the call Chronic Renal Failure, my right kidney was imploding, the left was starting to go as well.

I finally had the right kidney removed in 1999, which resulted in complications. I almost didn't make it. When I moved back to Edmonton from BC, I started seeing a nephorogist, Dr. Caldwell, from the U of A. In 2007 I had 75% renal function, fast-forward to today I have 13% and it is getting worse.

I decided I needed a place to share what I am going through for a variety of reasons:

1) to get out of my head and work through the anxiety and fear that I am feeling.

2) that somehow my ramblings can be of help to others.

3) most of all to share my journey with others and to help me share with my own family.

Great Sites for Information

Kidney Foundation of Canada

Kidney Foundation of Canada

National Kidney Foundation (USA)

National Kidney Foundation (USA)

(I will Post more as I find out more information.)

Here are some great foums and educational sites...

Kidney School
Kidney School
Kidney Friends Forum
Kidney Friends


Also there are some groups on Facebook:
Canadian Kidney Connection
Canadian Kidney Connection

Ontario’s Renal Community
Ontario’s Renal Community

I will add more as they come in. Cora

Saturday, December 1, 2012

ARG...frustrated update.

PD Cycler
Ok well as you all probably know the twin bag PD was not going well. So I was finally switched to the cycler. the first 2 days as I was getting used to it, it seemed to be working very well. Well its not. I am not draining nearly enough liquid as i was in those first 2 days.

So I call the after hours number...now I need to go back to the twin bags and do 4 full exchanges and the fifth time I only drain and not fill so that I can get some sleep tonight.

Since I am putting in 6 L my output should be close to that if not more and i am not. I was in the negative this morning. So, so frustrating. If we can't get the PD working than I am going to be going onto hemodialysis...not my first choice or favourite choice.

Thought I would update as I had sent out some rather cryptic tweets lastnight about alarms that were happening every 2 hrs.

Cora


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