Welcome One and All!

I started this blog to chronicle the my life as a renal patient. I started having issues back in 1983. I had an infection that hadn't been treated as an infection; it had been treated as pulled muscle as I had been working as a nanny at the time. Life went on and then I dealt with a series of infections of infections which resulted in 4 minor surgeries from 1985 to 87. Than I had 3 kids; dealing with minor infections along the way. This culminated in discovering in 1998 that I was in what the call Chronic Renal Failure, my right kidney was imploding, the left was starting to go as well.

I finally had the right kidney removed in 1999, which resulted in complications. I almost didn't make it. When I moved back to Edmonton from BC, I started seeing a nephorogist, Dr. Caldwell, from the U of A. In 2007 I had 75% renal function, fast-forward to today I have 13% and it is getting worse.

I decided I needed a place to share what I am going through for a variety of reasons:

1) to get out of my head and work through the anxiety and fear that I am feeling.

2) that somehow my ramblings can be of help to others.

3) most of all to share my journey with others and to help me share with my own family.

Great Sites for Information

Kidney Foundation of Canada

Kidney Foundation of Canada

National Kidney Foundation (USA)

National Kidney Foundation (USA)

(I will Post more as I find out more information.)

Here are some great foums and educational sites...

Kidney School
Kidney School
Kidney Friends Forum
Kidney Friends

Also there are some groups on Facebook:
Canadian Kidney Connection
Canadian Kidney Connection

Ontario’s Renal Community
Ontario’s Renal Community

I will add more as they come in. Cora

Friday, March 23, 2012

Went to the Renal Insufficiency Clinic yesterday...

This time Hubby went went with me (at my request). We got some great ideas in how to deal with my diet. Cannot believe what I have to avoid as far as food to avoid that is high in phosphorous.

Here is a good explanation from the Mayo Clinic...
The kidneys help regulate the level of phosphorus in your blood. If your kidney function is impaired, eventually you'll likely have elevated phosphorus levels (hyperphosphatemia). In turn, the elevated phosphorus decreases the level of calcium in your blood, which can lead to bone disease.
Often, 800 to 1,000 milligrams (mg) of phosphorus a day is the limit for someone who has kidney disease. Most healthy adults may eat double this amount.
Nearly every food contains some phosphorus, so you can't eliminate all phosphorus from your diet. Generally foods high in protein (some meats, dairy products, beans, legumes, nuts and seeds) are higher in phosphorus. Therefore, unless you're receiving kidney dialysis, you'll be asked to eat smaller quantities of them. Whole grains also are higher in phosphorus, so choose refined ones.
Example of Vegetables I am allowed to eat or have to avoid..

Avoid                                                             Permitted

Peas (fresh green, split, black-eyed), beans (black, garbanzo, lima, kidney, navy, pinto) or lentilsGreen peas (canned, frozen), green beans or wax beans
Starchy vegetables: corn, parsnips, pumpkin or sweet potatoStarchy vegetables: potato, rutabaga or winter squash
Other vegetables: artichokes, asparagus, broccoli, mushrooms, peapods (cooked) or spinachOther vegetables: cabbage, beets, carrots, celery, cucumbers, eggplant, lettuce, peppers, onions, tomatoes or summer squash

So it is noted that potato is permitted but it is also high in potassium which the kidney has a hard time processing as well. Interesting though that I cannot have cooked broccoli but I can have raw broccoli in small amounts.

Potassium guidelines for choosing foods

Fruit I can eat and fruit to avoid (list is from the Kidney Foundation of Canada)

Meat, Milk, Grains and Other Items I am allowed to eat and which to avoid.
Vegetables I can eat and which I need to avoid.
So I will be starting dialysis within the next month. I need to do training first and then I will be doing it on my own. My diet won't be as restrictive as it is now.


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