Bucket List Update

I wanted to update my bucket list to include the following:

8) I would love to meet Anderson Cooper (@andersoncooper). I actually would love to go to New York :)


9) I would love to meet Daniel Radcliff, he is so down to earth. Loved him on Anderson :)


10) I would love to own my yarn store especially in our area.


Cora

Yet Another update :D

I saw my specialist on Tuesday and all is stable. My kidney function is at 10%, dialysis won't start until I am at 8% and/or I feel soooooooo crappy. I am finding the hardest thing to deal with is the weight gain and the muscle aches. I have a kilo (2.5 lbs) since my last appointment. I can feel it as my hips and knees deal with the weight gain. I am trying to figure out how I have gained the weight as my eating patterns haven't changed...hmm. Could be the swelling and the toxins.

Ia m currently on the hunt for a new doctor. So far not doing well with finding one. As soon as they find out I am a renal patient who is in renal failure they don't want to take me on as a patient. That I am too much work...sigh. Dr. Passani is doing everything with regards to my renal issues, but in order for me to even get on the transplant list I have test that must be completed by a regular doctor.

So other than that all is good :D

Update...

So on September 27 th, I had an iron infusion done through IV. I was a bit nervous as I had heard that there had been severe side affects with doing this. However all went well, it was afterwards I was dizzy and nauseated so headed home and basically laid down and watched the tv and slept. On Wednesday I went to work feeling not to bad but half way through my shift I ended up needing to go home.  I even got to watch the AB PC Leader debates on Global, more about that on my main blog at Alberta has a new landscape this morning. I am feeling much better and have more energy. We now know that when I have this infusion done again to automatically book off the next day to save on aggravation for my manager at work and me.


Cora

Sorry it has been a while since I have posted...guess no news is good news right?

Left: Rocaltrol
Right: Sodium Bicarbonate

So I have some news. My numbers have been pretty steady, although I lost a percentage point in kidney function. I am now at 11% and my energy is down a bit. It has been decided that I need to get an iron transfusion. Most iron supplements mess with my IBS and we did try the newest iron supplement that was supposed to be easy on stomach, however the stomach cramps were so bad hubby was threatening to take me to the ER. So no oral antibiotics for me. I did try an oral herbal supplement but it wasn't giving me enough iron to help.

So now I take Imodium (for the IBS), Tylenol Migraine (self explanatory), Gravol (for nausea-use regular at home and the ginger for at work) as well as Sodium Bicarbonate (500 mg) 3 times a day and Rocaltrol once a day.

I also went to the Optometrist to get my eyes checked, hadn't had this done since the emergency visit in 2009. Turns out I have the beginnings of cataracts which is starting to affect my vision. As my eyes are dry I have to use drops twice a day, however that is easier said than done. I actually use an ointment as I can't get the drops in at all. These are not covered by Blue Cross at all. So now I have to go in every year for an eye exam, which is not covered by AB Health. We do have Blue Cross thankfully, although even that doesn't cover all things. Thankfully it did cover a 3 months supply of the Rocatrol ($116.83) paid only $20.26. The Sodium Bicarbonate doesn't appear to be covered, that cost $32.92. The cost for the eye ointment was $10.49 and I am having issues with getting this into the eye as well...frustrating!

I work at the Optic TV Lounge in Southgate (Edmonton AB).

I am enjoying my new job and got the approval from the new clinic, yeah! The other clinic wouldn't approve my working at all. I just have to make sure I don't get over tired is all. So anywho gotta run for now. See picture to the right. I have a lot of fun and it isn't a stressful job. The only thing is that I am tired and my muscles hurt at the end of the day, but I just feel so good after a good day at work. It is so much fun talking about Optik TV all day. I meet some great people. Love it!

Cora

World Kidney Day is March 10, 2011

Kidney Plushie

World Kidney Day is Happening March 10, 2011. I am planning to write and produce an amigurumi pattern to for this day.  I hope to have it available in the next week or so. I would love it if people donated an amount to their local kidney foundation in lieu of paying me for the pattern. As I am planning on developing a knit and a crochet pattern, the cost for the pattern would have been 3 dollars for either of the patterns or 4 dollars for both.  I will post the pattern here and on my Ravelry store.

Cora

So I guess I should let you know what happened at the specialists....

not much other than I had a complete and utter meltdown.  I am not handling my stress very well and have just found out that all the toxins in my body from being in predialysis isn't helping.

I am having difficulties trusting people and so I shut everyone out. I have done it in the past as whenever I let anyone in I ultimately got hurt and it is something I am dealing with right now. Not sure how to deal with my family and the moment...or even who to trust within that family. According to my one mother, I have a "new" and and an "old" family; now that I have this "new" family I don't need to be with the "old" family or some such nonsense.

I really would love to talk about it all but a publication ban on part of the story is in place so I could get arrested for contempt.  Hmmm almost sounds like an idea..lol. Suffice it to say that have a very strange family to deal with and somedays I wish I didn't have to.

This has become my theme song for my life lately...

 Bon Jovi's "Its My Life"


ITS MY LIFE
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Live in Chicago 2007

Bon Jovi - It's My Life (Live In Chicago 2007)
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Here are the lyrics...

Bon Jovi's It's My Life
Songwriters: Bon Jovi, Jon; Martin, Max; Sambora, Richard S;

This ain't a song for the brokenhearted
No silent prayer for the faith departed
And I ain't gonna be just a face in the crowd
You're gonna hear my voice when I shout it out loud

It's my life
It's now or never
I ain't gonna live forever
I just wanna live while I'm alive

(It's my life)
My heart is like an open highway
Like Frankie said, "I did it my way"
I just wanna live while I'm alive
'Cause it's my life

This is for the ones who stood their ground
For Tommy and Gina who never backed down
Tomorrow's getting harder, make no mistake
Luck ain't even lucky, gotta make your own breaks

It's my life
And it's now or never
I ain't gonna live forever
I just wanna live while I'm alive

(It's my life)
My heart is like an open highway
Like Frankie said, "I did it my way"
I just wanna live while I'm alive
'Cause it's my life

You better stand tall
When they're calling you out
Don't bend, don't break
Baby, don't back down

It's my life
It's now or never
'Cause I ain't gonna live forever
I just wanna live while I'm alive

(It's my life)
My heart is like an open highway
Like Frankie said, "I did it my way"
I just wanna live while I'm alive

(It's my life)
And it's now or never
I ain't gonna live forever
I just wanna live while I'm alive

(It's my life)
My heart is like an open highway
Like Frankie said, "I did it my way"
I just wanna live while I'm alive
'Cause it's my life!